Thus, the standard and suitability of existing care, particularly for older adults, have not yet been explored. As autistic people get older, they may suffer increasingly with poor health and as a result may transition to residential care. Residential care programmes for developing communication and life skills in adults on the autism spectrum. We formed an expert group, including older autistic people, family members, service providers, clinicians, and researchers, to discuss how residential care is run now and what research and recommendations are needed to adjust residential care to meet autistic needs. This work was supported by a Collaborative Research Grant (grant reference 7259) from Autistica to C.J.C., C.M., and S.F.-W. © Catherine J. Crompton et al., 2020; Published by Mary Ann Liebert, Inc. Home Services & Treatments Autism Care Autism Resource Directory Residential Programs for Adults with Autism. Researchers should work with autistic older adults and families to develop this training and evaluate its impact. All of our services are CQC registered. Salvesen Mindroom Research Centre, University of Edinburgh, Edinburgh, United Kingdom. Progression through a care pathway that fulfils each individual’s maximum potential; Receiving the right support. This article provides an overview of the discussions and outcomes from each workshop to encourage future research and practice development around the suitability of residential care homes for older autistic adults. Services should ensure that autistic people have the option and support to engage in activities and socializing when they want to, rather than assuming that social time is always beneficial. By recognising the diverse range of needs presented by people with autism and the challenges they are likely to face in everyday life, these services have been designed to provide flexible and creative solutions. Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: The Special Needs and Autism Project (SNAP), “Older Adults with ASD: The Consequences of Aging.”, Why we need research about autism and ageing, Mukaetova-Ladinska EB, Perry E, Baron M, Povey C; Autism Ageing Writing Group, Ageing in people with autistic spectrum disorder, Developmental trajectories in adolescents and adults with autism: The case of daily living skills, Damiano CR, Mazefsky CA, White SW, Dichter GS, Future directions for research in autism spectrum disorders, Aging in autism spectrum disorders: A mini-review, Research on adults with autism spectrum disorder: Roundtable report, Addressing the needs of adolescents and adults with autism: A crisis on the horizon, The health status of adults on the autism spectrum. The creation of a new transitional tool for autistic older adults should invite the sharing of information about communication styles and strategies, how pain and stress are experienced and communicated, strategies to manage anxiety and upset, sensory processing information, and communication around personal care preferences. With more research in this area, we can start to improve elder care for autistic people so that their later life is long, happy and healthy. This work would benefit from the close involvement of autistic people, their family members (especially siblings or children, who may be responsible for elements of care in older age), and also relevant practitioner and policy groups. Policy recommendations - Autistica Briefings, Call for proposals: GP Attitudes to Health Checks - A Review. The Hughes Center offers a residential treatment program for males and females, ages 10 – 22, who have been diagnosed with an Intellectual Disability and/or Autism Spectrum Disorder, and who are experiencing significant social and behavioral difficulties within the home, school, and community environments. The authors thank the range members of the multiexpert group for their input to this process. While most staff working in residential care will have received training on age-related conditions such as dementia, few are likely to have received autism training. We need to make sure autistic adults who cannot live independently, get the best possible care. Independent Autistic Consultant, Norwich, United Kingdom. var sproutencodeemailRot13String = "
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